Advanced Cardiac Therapies Improving Outcomes Network to Improve the Health of Pediatric and Congenital Heart Disease Patients with or at Risk of Heart Failure (ACTION)

Heart failure is a condition where the heart muscle cannot pump blood effectively to meet the body's needs. Among children and adults with complex heart disease (congenital or acquired), heart failure is the main cause of death or heart transplantation. The purpose of the study is to evaluate heart failure progression among children from multiple sites around the world, to find the best ways to manage the disease and work towards long and healthy lives in this population.

Inova Fairfax Medical Campus
3300 Gallows Road
Falls Church, VA 22042
 

• Patient admitted to the hospital or followed outpatient that are at risk of heart failure or have heart failure regardless of etiology.
  • The heart failure diagnosis includes any patients with heart dysfunction or those at 
    risk of heart dysfunction with or without symptoms.

• Patients on standard ECMO as only support strategy.