Fetal Ebstein Anomaly And Tricuspid Valve Dysplasia (Feat) Registry

Ebstein anomaly or tricuspid valve dysplasia (EA/TVD) are rare conditions affecting the structure of the tricuspid valve in the heart. Typically, it only allows blood to flow from the right atrium to the right ventricle, but in many children with EA/TVD, there is leakage back into the right atrium. This may cause problems with circulation of blood flow to the rest of the body as well as abnormalities of heart function, and/or heart rhythm. The aim of the registry is to follow the management and outcomes of pregnancies affected by these conditions in order to improve future care pathways.

Inova Fairfax Medical Campus:
3300 Gallows Road 
Falls Church, VA 22042

• Mothers of fetuses (ages 14-54) diagnosed with EA/TVD of any severity with normal segmental anatomy (AV and VA concordance)
  • Mothers may be enrolled at any gestational age, up to the day of pregnancy outcome (elective termination of pregnancy, demise, or live-birth)
  • Singletons, twins or higher order multiples may be included

• Mothers of fetuses diagnosed with EA/TVD in the context of abnormal segmental anatomy (AV and/or VA discordance) or other lesions, such as congenitally corrected transposition of the great arteries or pulmonary atresia with intact ventricular septum
• Mothers of fetuses that are unwilling to provide consent to the prospective arm of the registry cannot be enrolled in either the prospective or the retrospective arms of the study. 
• Mothers of fetuses that have withdrawn from the prospective arm of the registry cannot be transitioned into the retrospective arms of the registry.