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8110 Gatehouse Road, Falls Church, VA 22042

Pulmonary Hypertension Association Registry (PHAR)

General Information

Age Group

Adult

Status

Active

Protocol Number

N/A

Background Information

The goal of the PHAR is to measure and improve quality of care (including assessing differences in adherence to evidence-based guidelines and establishing benchmarks for health outcomes) while determining the clinical effectiveness, comparative effectiveness, and cost effectiveness of treatment approaches.

Offered At

Inova Heart and Vascular Institute
Advanced Lung Disease and Transplant Clinic
3300 Gallows Road
Falls Church, VA 22042

Principal Investigator

Oksana Shlobin, MD

Eligibility Information

  • New patients to Inova Fairfax Advanced Lung Disease and Transplant Clinic with either newly diagnosed or established PAH (Group 1) or CTEPH (Group 4) (within 6 months of first outpatient visit)
  • Patient must give informed consent to have data to be abstracted and included in the PHAR
  • Able to understand and speak either English or Spanish

Ineligibility Information

  • Any diagnosis other than PAH or CTEPH