National and international
Annual membership contribution of $50 requested, but will accept any amount or waive entirely
Provides support to families and individuals of any age affected directly or indirectly by an allied disease. The allied diseases include all the lysosomal storage diseases like Tay-Sachs and leukodystrophies like Canavan.
- Answers questions by phone/email
- Information and resources
- Sibshops or sibling support
- The Peer Support Group is a network of over 400 families in the U.S. and around the world who are all affected by an allied disease. The group provides support, information and friendship to one another.