Winter Weather Notice - February 6

The National Weather Service Baltimore/Washington DC issued a winter weather advisory in effect from Feb 5, 9 p.m., until Feb 6, 10 a.m. If you have an in-person appointment at our outpatient offices, please contact your office to discuss switching to a virtual appointment. If a virtual appointment isn’t an option, we may reschedule your appointment.

Stay tuned for the latest updates about delayed openings at inova.org/weather – and stay warm and safe.

Contact: Kim Crawford, Director of Member Services
1.800.906.8723
Email: kim@ntsad.org
Web site: www.ntsad.org

Area

National and international

Fees

Annual membership contribution of $50 requested, but will accept any amount or waive entirely

Services

Provides support to families and individuals of any age affected directly or indirectly by an allied disease. The allied diseases include all the lysosomal storage diseases like Tay-Sachs and leukodystrophies like Canavan.

  • Answers questions by phone/email
  • Information and resources
  • Sibshops or sibling support
  • Newsletter
  • The Peer Support Group is a network of over 400 families in the U.S. and around the world who are all affected by an allied disease. The group provides support, information and friendship to one another.