Inova Cystic Fibrosis Center
Accredited by the Cystic Fibrosis Foundation (CFF), Inova offers expert care and specialized disease management to pediatric and adult patients living with cystic fibrosis (CF).
We participate in the CFF patient registry and other research studies – including collaboration with the National Institutes of Health – to facilitate the development of new therapies for advanced and rare lung diseases. Our goal is to improve the length and quality of life for all people living with CF.
The Cystic Fibrosis Center at Inova Fairfax Medical Campus is a combined effort of the Inova Advanced Lung Disease and Transplant Program and Inova Children’s Hospital — in partnership with the Pediatric Lung and Allergy Center. Together, we provide comprehensive care to all patients, allowing for a seamless transition from childhood to adulthood.
Adult Cystic Fibrosis Program
The Inova Adult CF care team provides comprehensive care to adults (18 years and older), spanning the entire disease spectrum – from normal lung function to advanced lung disease and lung transplantation.
Quarterly clinic visits are recommended, with spirometry and respiratory cultures performed at each visit. Patients can participate in the CF Foundation Patient Registry, which informs clinical care and research funding priorities for the CF Foundation each year.
An outpatient pulmonary rehabilitation/exercise program specifically designed for people with CF is also available.
Read a letter from our director to learn what we accomplished in 2020, and about our plans for 2021.
Pediatric Cystic Fibrosis Program
While most care occurs outside the hospital, inpatient pediatric CF care is provided in the Inova Children’s Hospital Level IV NICU, PICU and pediatric inpatient units.
Outpatient services for children living with CF are provided at the Pediatric Lung and Allergy Center, a division of Fairfax Neonatal Associates, P.C.
Cystic Fibrosis Pulmonary Fitness Program
The Inova Cystic Fibrosis Pulmonary Fitness Program is an 8-week outpatient program for people (ages 16+) living with cystic fibrosis. Our skilled respiratory therapists design customized exercise and educational plans to help improve lung function and overall quality of life. Patients will meet with the therapist two times per week for the duration of the program (16 60- to 90-minute visits). Any patient living with cystic fibrosis can participate.
This program is covered by most insurance plans and is available at Inova Fairfax Medical Campus.
Cystic Fibrosis Nutrition Support Program
Cystic fibrosis (CF) is a chronic disease that affects multiple organs in the body. Ninety percent of people living with CF are also diagnosed with pancreatic insufficiency. When the pancreas does not make enough digestive enzymes, it is more difficult for the body to break down and absorb nutrients. Additionally, labored breathing increases the body’s energy requirements. Therefore, nutritional status is critical for people living with CF.
Malnutrition in CF is multifactorial and caused by:
- High calorie requirements (Sometimes 120 – 150% higher than the general population)
- Inability to properly absorb food
- Not having enough food to eat
- Not eating enough of the right foods
More than 25 percent of people living with CF in the U.S. (and up to 45 percent of those on Medicaid) have food insecurity – a lack of reliable access to a sufficient quantity of affordable, nutritious foods.
Through the generous support of donors, our clinic is able to offer patients with food insecurity access to a sustainable food pantry stocked with nutritionally rich foods and grocery store gift cards.